{"id":13554,"date":"2025-06-30T12:33:19","date_gmt":"2025-06-30T12:33:19","guid":{"rendered":"https:\/\/wagmc.ug.edu.gh\/staging\/?page_id=13554"},"modified":"2025-07-21T16:31:11","modified_gmt":"2025-07-21T16:31:11","slug":"sickle-cell-disease-genomics-network-of-africa","status":"publish","type":"page","link":"https:\/\/wagmc.ug.edu.gh\/staging\/sickle-cell-disease-genomics-network-of-africa\/","title":{"rendered":"Sickle Cell Disease Genomics Network of Africa"},"content":{"rendered":"\t\t
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SickleGenAfrica <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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About SickleGenAfrica <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Collaborative Sites<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Projects<\/a><\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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About SickleGenAfrica<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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To align the survival of individuals who have sickle cell disease in Africa with national norms.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Mission<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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To develop prognostic biomarkers of organ damage through the discovery of key genetic modifying factors and cognate mechanisms, and build capacity and career pipelines in Africa to support patient-centred research to advance the development of innovative therapy for SCD.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Leadership of SickleGenAfrica<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Professor Solomon Ofori-Acquah<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director\/ Principal Investigator<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Professor Ofori-Acquah was appointed Dean of the School of Biomedical and Allied Health Sciences, University of Ghana in January 2017, and Associate Professor of Medicine and Human Genetics, University of Pittsburgh, USA in 2013. He is the Centre Leader of the West African Genetic Medicine Centre (WAGMC), and, Director and Principal Investigator of the Sickle Cell Disease Genomics Network of Africa (SickleGenAfrica).<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Professor Gordon Awandare<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Co-Principal Investigator<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Gordon Awandare is an Associate Professor at the Department of Biochemistry, Cell and Molecular Biology of the University of Ghana. He is also the Director of the West African Centre for Cell Biology of Infectious Pathogens (WACCBIP). He obtained his BSc Biochemistry degree in 1998 and MPhil Biochemistry in 2002, both from the University of Ghana. He subsequently undertook his doctoral studies at the University Of Pittsburgh Graduate School Of Public Health, Pittsburgh, Pennsylvania, where he graduated with a PhD degree in Infectious Diseases and Microbiology in 2007, winning the Most Outstanding Student\u2019s award in the process. Prof Awandare did his postdoctoral fellowship at the Malaria Vaccine Division of the Walter Reed Army Institute of Research in Silver Spring, Maryland from 2007-2010.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Professor Julie Makani<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Co-Principal Investigator<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Julie Makani is Associate Professor in the Department of Haematology and Blood Transfusion at Muhimbili University of Health and Allied Sciences (MUHAS) (http:\/\/www.muhas.ac.tz), the main clinical, academic and research centre in Tanzania. Tanzania has recognized sickle cell disease (SCD), as a major public health problem and it has been included as a priority condition in the national strategy for Non-Communicable Diseases in the Ministry of Health<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Organizational Structure<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Site Coordinators<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Professor Obiageli Nnodu<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Site Coordinator - Abuja<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Obi is the Site Coordinator for the Abuja Site and a Professor of Haematology and Blood Transfusion, Director, Centre for Sickle Cell Disease Research and Training University of Abuja (CESRTA), Honorary Consultant Haematologist, University of Abuja Teaching Hospital Gwagwalada, Abuja Nigeria. She is a founding member of Sickle CHARTA and Vice Chair of the Nigerian Sickle Cell Support Society (SCSSN) which works with the government and professional groups for the control of SCD in Nigeria. In that capacity, she is responsible for most of the in-country activities of the Network. She serves on technical committees of the government on non-communicable diseases and has completed a number of national assignments related to SCD. Obi is a member of the American Society of Hematology African Newborn Screening and Early Intervention Consortium while also a Chevening Scholar and alumnus of Imperial College London. She is Chair Advocacy of Sickle Pan African Network (SPAN).<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Professor Edeghonghon Olayemi<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Site Coordinator - Accra<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Edeghonghon is the site coordinator for Accra. He is a graduate of the College of Medicine, University of Ibadan, Nigeria and a Consultant Haematologist. He is the immediate past Director of the Ghana Institute of Clinical Genetics (GICG), where the premier adult sickle cell disease clinic in Ghana is located. His areas of expertise include sickle cell disease, thrombosis and haemostasis. He is a Fellow of the Higher Education Academy, U.K. He coordinates all the activities at the Accra site and also represents the site at the site coordinators\u2019 meeting.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Josephine Mgaya<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Site Coordinator - Dar es Salaam<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Josephine is the Site Coordinator at the Dar es Salaam site. She has ten years\u2019 working experience in her field with an impressive appointment with the National Institutes of Health in the Laboratory of Early Sickle Mortality Prevention in the United States. She enjoys working hand in hand with other scientists to be able to bring about the answers in the management of SCD. Josephine has a BSc in Chemistry and Microbiology and a PgD in Haemoglobinopathy. She is currently working on studies involving intervention for individuals with Sickle Cell Disease such as early detection and management of complications, undergoing Hydroxyurea therapy. Her study will lead to an MSc by Research and Publication.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Site Coordinator - Kano<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Najibah is an investigator and the site coordinator for the Kano, Nigeria site on the SickleGenAfrica: Sickle Cell Disease Genomics Network of Africa, where she oversees research activities, ensure protocol adherence, provide guidance for general clinic management of the study participants and also serve as a member of the steering and executive committee. She has been working in the department of hematology in Bayero University and Aminu Kano Teaching Hospital, northern Nigeria for over twelve years. Initially, as a resident doctor, she went on to become a lecturer and consultant hematologist. She is a practicing clinician and a laboratory physician in Kano, northern Nigeria. As a hematologist with a special interest in sickle cell disease, her research experience has been focused mainly on this area. She received the prestigious David Satcher Award, for a full tuition scholarship for a Masters in Public Health at Vanderbilt University (2013), and an NIH Forgarty fellowship award in June 2014. She concluded both the MPH program and the NIH Forgarty fellowship in May 2015. She was the site investigator of the first NIH funded Primary Prevention of Stroke in Children with Sickle Cell Disease in Nigeria trial referred to as the SPIN trial (1R21NS080639-01).\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Dr. Vivian Paintsil<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Director\/ Principal Investigator<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Vivian is the Coordinator for the Kumasi site. She oversees the organization of all project activities in Kumasi. Also, she is the clinical lead and sees to the daily running of the project. She completed KNUST with an MBChB and thereafter her fellowship training (FWACP), specialising in Paediatrics. She undertook a subspecialty training in Paediatric Haematology\/Oncology in 2013 at the University of Cape Town; and has a certificate in Health Administration and Management. Vivian is a Specialist Paediatrician, and has been taking care of children with SCD for the past 14 years. She has been involved in the Newborn Screening Project at KATH and ORDISS, and is currently on the Sickle Pan African Research Consortium (SPARCo) project. It is her dream to have a foundation to take care of SCD affected children.<\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Dr. Titilope Adeyemo<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Site Coordinator - Lagos<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Titilope is the Site Coordinator for the Lagos Site and an Associate Professor in the Department of Haematology & Blood Transfusion, Faculty of Clinical Sciences, College of Medicine, University of Lagos and a Consultant Hematologist to the Lagos University Teaching Hospital, Nigeria. She earned her medical degree at the College of Medicine, University of Lagos, and completed her residency training in hematology at the Lagos University Teaching Hospital. She obtained a Master\u2019s degree in Hemoglobinopathies at the University College London with a distinction. Her research interests are in sickle cell disease (SCD), blood transfusion science and inherited bleeding and clotting disorders. She is interested in the characterization of SCD based on genetic variations and impact on disease severity.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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The H3Africa Consortium<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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SickleGenAfrica About SickleGenAfrica Collaborative Sites Projects About SickleGenAfrica Vision To align the survival of individuals who have sickle cell disease in Africa with national norms. Mission To develop prognostic biomarkers of organ damage through the discovery of key genetic modifying factors and cognate mechanisms, and build capacity and career pipelines in Africa to support patient-centred […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"full-width-container","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-13554","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/pages\/13554","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/comments?post=13554"}],"version-history":[{"count":6,"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/pages\/13554\/revisions"}],"predecessor-version":[{"id":14174,"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/pages\/13554\/revisions\/14174"}],"wp:attachment":[{"href":"https:\/\/wagmc.ug.edu.gh\/staging\/wp-json\/wp\/v2\/media?parent=13554"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}